As the MIT Technology Review reports, an Australian woman named Rita Leggett who received an experimental seizure-tracking brain-computer interface (BCI) implant from the now-defunct company Neuravista in 2010 has become a stark example not only of the ways neurotech can help people, but also of the trauma of losing access to them when experiments end or companies go under.
Leggett was, as a recent paper in the journal Brain Stimulation about her situation explains, 49 when she was recruited for the trial, though she'd suffered from epilepsy since she was just three years old. While other participants reported varying degrees of success with the implant, her own results were above and beyond.
Before implantation, Leggett had trouble doing everyday activities out of fear of seizures. But after it, she felt she could, as she told researchers, "do anything," and was able to participate in a lot of the regular stuff many of us take for granted, such as driving a car and seeing friends.
All of that changed, however, just a few short years later when Neuravista ran out of money and trial subjects like Leggett were told to get their implants removed.
She and her husband attempted to fight the demand, attempting to buy the implant outright and, as University of Tasmania ethicist and paper coauthor Frederic Gilbert told the Tech Review, remortgaging their house to do so. They were unsuccessful, and she was the last person to get the Neuravista BCI removed.